It’s Been Nice to Reach Out

Not to anyone I know, you see, but to complete strangers whom I am linked to by the fact that they, too, have epilepsy and to see how those other people try and handle the  great daily uncertainties that epilepsy brings to those inflicted with it.

There has been a nice site-I won’t say which one- but a site that has allowed me to speak with other people about all kinds of things. Neurological subjects have varied widely from more  normal, common questions from people asking other online subjects whether or not certain medications have worked for them. Other people with epilepsy have had a little fun online at their own expense: One person comically expressed how they had burnt themselves with hot water while boiling something because a  seizure occurred at, well, the wrong time. Though he made light of it, this person ended up being OK despite burning their foot and hitting their head.

I just love the entries like this where, despite their disorders, many people have found a way to put a smile on my face and, hopefully, others. That is one of the things I try to push forward when I speak to others who may not have such a cheery or uplifting entry and are just looking for someone to talk to because they are confused or scared with whatever  seizure disorder that they have.

No, I didn’t make this an awfully big blog but it was short and to the point: there are not an awful lot of details that need to be shared but the subject, I thought, was a fun one to write about.

Overall, it’s  been so interesting, though. I’m willing to bet that I will continue talking with people and giving encouraging words if they’re feeling sad or frustrated from living with epilepsy. To me, it sometimes feels like a job because I can do that(talking), give advice, and I have no problem trying to help people feel better about themselves.

 

4 thoughts on “It’s Been Nice to Reach Out

  1. Danman – great news about the site you found & are able to share your experiences with. YOU, through your eternal optimism & humor WILL help those who have yet to see the “good “( if there is any) out of all this. I know I’ve said it in the past, and I tell people, you are one hundred times a MAN that any of us who are not stricken by this stupid condition. You are the definition of what a man is, and I mean it. Never forget that. Your daily life is a testament of that. Great job & keep it up! You know if you need Anything you know where to find me Love ya-

    Sent from my iPhone

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    • Wad- Thanks so much….again!! I’ve never been one to reach out, really, to anyone-not even Mike, and I’m not quite sure why. Even so, please know that I read and appreciate every single word that you have ever written in response to one of my blogs.

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  2. I’m so happy you found a “support group “ of peers that are going through the same thing you are Dan. It must help to know that you are not alone and that others understand.
    Love you Dan

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    • Yeah, I did it more out of curiosity at first to see what kinds of seizures people had. It turned out there are far more different types than I first thought. Also, you should see some of the personal stories people pass along on this site about seizures they or a family member have had and injured themselves. It’s unreal, dude!

      Sent from my iPhone

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